Wednesday, May 1, 2013

Road Bumps

      Monday we were discharged from the hospital, and we were all so happy to finally be home!  Hazel was so glad to see her siblings, drink from her own cup, eat her own food and sleep in her own bed!  On Tuesday, I was on the phone constantly with insurance companies, pharmacies, the hospital, and the like, just trying to figure out the logistics of the coming months.  We also met our in home care nurse who will be coming to us twice a week to draw Hazel's blood and change the dressings on her PICC line, which will save us from driving down to the hospital to do it; so praise God for that!  But we've hit a couple of road bumps, and I get the feeling that this is what the next couple of years are going to be like.  No planning and a lot of "flying by the seat of our pants!" 
     First, poor little Hazelnut has developed a terrible rash all over her back, bottom and scalp.  We have tried everything to relieve it, but she is absolutely miserable.  The doctor suspects that she is having a reaction to one of the medications that she is on, so we are going to try something different to see if that helps.  Second, after having a follow-up appointment with her oncologist her at the hospital this morning, Hazel needed a blood transfusion due to her counts being extremely low (this is very routine, and is why donating blood is a big help).  While with the doctor, her vitals looked great, but in the 5 minutes it took to walk from the doctors to the Infusion Center, Hazel spiked a fever and her blood pressure went through the roof.  Fever=admission to the hospital.  So here we sit (Hazel and I), back in the same room on the 4th floor, trying to relieve her rash and fever, and waiting for her blood culture results to tell us if she has an infection.  This will take at least 48 hours...
     Please pray for God to give all of us the ability and stamina to adjust to the craziness that is becoming our new normal.  And please continue to pray for Hazel to stay in good health throughout her treatment, so that she can have the strength to really fight this thing!

ISAIAH 41:10- "Do not fear, for I am with you; do not anxiously look about you, for I am you God.  I will strengthen you, surely I will help you, surely I will uphold you with My righteous right hand."  May these word resonate within all of us...


  1. Lauren and Aaron, I have been praying non stop for lovely Hazel and I just know you both have been doing all that you can. Know my thoughts are always with you and I love you all dearly. God does have a plan for all of this, just like always. Keep your spirits high and of course always trust in Him. I love you all very much and will continue to pray for you all in this very trying time.
    Melissa and Lucas

  2. I am so sorry to hear this! Praying for your family and sweet little Hazel. Will be at the hospital tomorrow morning, maybe I will see you guys around! :)

  3. I am sorry that this is your new normal
    .I can't imagine how hard this is for all of you. You are being prayed for and please don't hesitate to post needs. Praying for more fever no rash perserverance and joy in our trials.

  4. Praying for your precious baby girl & family!!! May our gracious Lord give you His peace, strength & perseverance.
    Alicia Perez

  5. We wish we could be by your side right now. Things will improve just know that we are all praying for Hazel and your family.

  6. I am A+ and would be happy to give blood to Hazel. Just tell your Aunt Laura to give me a call whenever it is needed.
    Your family is in our prayers.
    Kathy Jamison

  7. Sending Prayers and also this site so Power of Prayer is so Powerful in Numbers.