Tuesday, February 4, 2014
Today was the day we received the results of all of Hazel's scans, and I have to say that our God is good! We did not receive the coveted NED results we all were praying for, but we got as close to it as I think we possibly could have. Our little Hazelnut's body is completely clear of cancer (praise God!!), but there was a small spot in her kidney that lit up on her MIBG scan. Dr. Tran informed us that this small spot could either be residual disease, or actually just normal kidney uptake that is lighting up; and it is near IMPOSSIBLE to determine which it is. So we do not have a definitive answer as to whether or not our daughter is cancer free, which is a bit frustrating. However, the doctor's opinion is that it is much more likely that the small spot is normal kidney uptake and not cancer, and he is optimistic for her and very pleased with these results! If it is residual disease, the spot is much smaller than any of her other scans and would more than likely be taken care of during Immunotherapy. In addition, many of his other patients (which are also many of our good friends/family we have grown to know and love on this Neuroblastoma journey), have gone into Immunotherapy with quite a bit more disease than this potential spot on Hazel's kidney. Furthermore, neuroblastoma is an extremely aggressive form of childhood cancer, that likes to progress when off chemotherapy and other forms of treatment, so that fact that Hazel showed absolutely no signs of progression is an extremely wonderful piece of news to hold on to! So overall, we are very encouraged and know that God is hearing the cries of our hearts. I would like to spend some time to fill you all in on what is coming next, but we ended up waiting for two and a half hours for this appointment today, after having physical therapy in the morning; so we are absolutely exhausted! Please keep praying and I will post again very soon!