This next week will continue to be full of appointments and family time. In fact at this very moment Hazel is getting her MIBG scan and is doing great! As soon as we know anything, I will let you all know, but if it takes me a few days, just know it is because Hazel and I are having a great time being with our family!
Wednesday, September 18, 2013
A Complete Work-Up
These last days at home have been absolutely amazing and our little Hazelnut is doing so much better! Thank you so much for thinking of us and continuing to keep us in your prayers, because we feel them! I haven't updated since arriving home because we have been really enjoying all of this family time we finally have together and have been taking advantage of every moment before heading into the stem cell transplant admission next month. Also, we have had tons of appointments at the hospital to do a complete work-up (scans, kidney test, ECHO, dental exam, etc...). This is all done to determine where Hazel's disease is exactly at so that the doctors can come to a consensus about all future treatment, and most specifically what kind of high dose Chemo and how much of it she will receive during the transplant. This will (prayerfully) be the very last infusion of Chemo our little Hazelnut will EVER receive, and I am so looking forward to that moment that it is done. However, this particular chemo's job is to wipe out her entire immune system and leave her with no defenses so that when they give back her stem cells we collected months ago, she can regrow a brand new immune system that will be stronger and more resistant to Neuroblastoma. We meet with get doctors on the 24th to discuss all of her test results and go over every single detail of the stem cell transplant process. I'm definitely nervous about this meeting but I am also ready to have as much information as possible so I can be prepared for next month.