Usually, once this routine is done, we go right out for a walk to say hello to all of her nurse and patient friends, and to check if the playroom is open! Unfortunately, Hazel has been sneezing a lot today, so we have to stay in our room in isolation until they can determine whether or not she has a virus. They do this by spraying water up her little nose and sucking out mucous with a small machine to have it tested (TMI, I know!). However, right after spraying the water in her nose, the suctioning device decided to stop working, so they have to come back and do it again! PLEASE PRAY HAZEL IS NOT SICK AND THAT GOD WILL TAKE THESE SYMPTOMS AWAY! IF SHE IS SICK, WE MUST STAY IN ISOLATION THE WHOLE TIME WE ARE HERE! In addition, Hazel will also be getting a blood transfusion before they start her Chemo Round #5 tonight and will have to get her dressing on her line changed tomorrow (this happens once a week and she absolutely hates it!). It is so hard to watch her have to go through all of this, but she continues to remain positive and a smile comes right back to her face once the tough part is over. I admire this little one so much....
Another part of our new routine happens at home. Aaron and I have had a crash course in nursing school because she not only requires care in the hospital, but also every day at home. I believe I have written about this before but as a quick recap: we have a home nurse who comes out twice a week. She draws blood and does a clinical check on both days, and then on the second day she also changes Hazel's dressing. Then each and every day Hazel has to take 2 different medications and a third one is added to prevent nausea and vomiting as needed. When we give her a bath, we must cover her line with plastic wrap (Press N' Seal has become our best friend), and medical tape because it is not allowed to get wet. For at least a week after Chemo, while Hazel's white blood cell counts are low, we are also required to give her daily injections. Aaron must prepare the syringe, which take many steps, and while I hold her down he cleans her little leg and gives her the shot. We have her throw the, what she calls, "yucky shot" supplies away and gets a handful of M&M's. Then, before bed we have to flush both of her lines with a syringe of saline to clean it out and a syringe of Heparin, which is a solution that stays inside her line to keep it from clotting. This requires many steps which I laid out in these photos:
|Setting out all of the supplies|
|Cleaning the red line|
|Flushing with saline|
|Flushing with Heparing|
|Cleaning the blue line|
|Flushing with saline, and Hazel loves to help!|
|Flushing with Heparin|
|Throwing the trash away!|
- Psalm 91:4 "He will cover you with His pinions, and under His wings you may seek refuge; His faithfulness is a shield and a bulwark"
- Psalm 89:8 "O Lord God Almighty, who is like You? You are mighty O Lord, and your faithfulness surrounds you"
- Lamentations 3:22-23 "The Lord's lovingkindnesses indeed never cease, for His compassions never fail. They are new every morning; great is your faithfulness"
Thank you for keeping up with our family and I will update again soon!